Sickle Cell Disease

Sickle Cell Disease describes a group of inherited red blood cell disorders. Since this disease is genetically passed down at birth, it cannot be prevented. Sickle cell disease is a life-long illness. The severity of the disease varies widely from person to person. The symptoms that come along with these disorders can be controlled and their severity can be decreased with proper care. These activities will educate you on what the disease is, what the symptoms are, and how to ensure a lessened effect through proper care.


support group sitting in circle talking Coping with Sickle Cell Disease

In this module we learn about ways of coping with Sickle Cell Disease. We look at meditation, muscle relaxation, & support systems. CLICK HERE to begin.

 

man face-to-face with babyGenetics of Sickle Cell Disease

In this module we learn about how genetics play a role in Sickle Cell Disease. CLICK HERE to begin.

 

 

fresh vegetables and herbs over green backgroundNutrition to Fight Sickle Cell Disease

In this module we learn about ways to use nutrition to fight Sickle Cell Disease. We look at using antioxidants & proteins to reduce inflammation. CLICK HERE to begin

 

prescription pillsMedications used with Sickle Cell Disease

In this module we learn about medications used with Sickle Cell Disease. We learn about Hydroxyurea, Exjade, & Jadenu. CLICK HERE to begin.

 

diagram of internal part of the chestOrgans Affected by Sickle Cell Disease

In this module we learn about organs affected by Sickle Cell Disease. CLICK HERE to begin.

 

 

home lit up at nightPainful Crisis with Sickle Cell Disease

In this module we learn about ways to manage a painful crises with Sickle Cell Disease. We look at causes of pain, prevention, & treatment. CLICK HERE to begin.

 

doctor sitting at a desk Pediatric to Adult Care with Sickle Cell Disease

In this module we learn about the transition from pediatric to adult care with Sickle Cell Disease. CLICK HERE to begin.

 

closeup of couple with hands over pregnant stomach

Pregnancy & Sickle Cell Disease

In this module we learn about pregnancy with Sickle Cell Disease. CLICK HERE to begin.

 

 

washing hands over a sinkPreventive Health with Sickle Cell Disease

In this module we learn about preventive health with Sickle Cell Disease. We look at tests, food safety, & creating a plan for problems. CLICK HERE to begin.

 

nurse giving shot Procedures & Treatment with Sickle Cell Disease

In this module we learn about a PICC Line, Infusaport, & a procedure called Apheresis. CLICK HERE to begin.

 

pile of prescription pills

Respect for Opiates with Sickle Cell Disease

In this module we learn to respect the use of opiates when treating pain caused by Sickle Cell Disease. CLICK HERE to begin.

 

2017 Annual Sickle Cell Symposium2017 Sickle Cell Symposium

Kathryn Yarkony, PhD is Transplant Coordinator at John Hopkins University and she speaks on Stem Cell Transplant as a Cure for Sickle Cell Disease: Who, When, & How. CLICK HERE to watch the full video.